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Find A Cure Transit Pulmonary Hypertension Resources:
Accredo     > website
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Accredo is creating better models of care for patients with chronic and complex conditions through our unique Therapeutic Resource Centers. We understand that managing a chronic condition requires personal attention from caring, knowledgeable professionals. Our patient care teams are staffed by pharmacists, registered nurses, pharmacy technicians, patient care representatives, and reimbursement specialists—each with therapy-specific training for a focused level of service.
AdCirca - United Therapeutics     > website
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book: Honest Medicine by Julia Schopick     > website
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HONEST MEDICINE introduces four lifesaving treatments that have been effectively treating--and in some cases curing--people for 25-90 years.
Book: Your Medical Mind     > website
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Book: Your Medical Mind by Dr. Jerome Groopman that focuses on patient decision making
Caremark     > website
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Caring Voice     > website
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Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients.
Carol's Blog - Carol Miletti     > website
Carol Miletti's blog.
Cells That Heal Us From Cradle To Grave: A Quantum Leap in Medical Science     > website
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book on stem cell research
CHOIR Stars for the Creative and Performing Arts     > website
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
Curascript     > website
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At CuraScript, we are dedicated to the delivery of extraordinary care, one patient at a time. Providing affordable, high quality care for complex chronic conditions requires cooperation among many healthcare experts. CuraScript offers a broad range of services for physicians, health plan sponsors, and pharmaceutical manufacturers to support the delivery of that care.
Disability Benefits Help     > website
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits. These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
Fear Not [book on surviving kidney cancer]     > website
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This father and son team up to tell a story of faith and healing. This devotional styled book also offers personal, practical, and biblical insights that sustained these men during a struggle for health and faith. "God had a purpose for keeping me here."
Flolan - GSK     > website
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Joey's Song/Joe Gomoll Foundation     > website
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Joey's Song is a series of CD's that brings together national and international artists to raise money for epilepsy research and advocacy, in honor of Joey Gomoll. Joey was just shy of 5 years old when he passed away in March 2010. In the months since then his father, and a passionate group of musicians, friends and supporters, have pulled together a collection of rare and unreleased music, as well as special recordings and children's songs. Joey's Song: Volume One and Joey's Song for Kids: Volume 1 were released January 25, 2011! Get your copies today!
Landis Vance     > website
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Resources to support spiritual well-being for those with chronic illness. Scholarly articles on the inter-relationship between spirituality and medicine. My personal struggles living with an incurable metastatic cancer.
Partnership for Prescription Assistance     > website
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Site that help people who are uninsured get treatment. Their services are free.
Patient Services Inc.     > website
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Patient Services, Inc. (PSI) is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind. Two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and co-payments. Since 1989 we have led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas.
PH Central (PHC)     > website
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Pulmonary Hypertension Information, Support and Advocacy Since 1999.
PH-Informational PSAs     > website
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informative PSAs about PH
PPH Cure     > website
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Internet Journal of PH Research
Pulmonary Hypertension Association (PHA)     > website
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Our mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.
Pulmonary ReTransplant Registry     > website
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The Pulmonary Retransplant Registry was established in late 1991 in order to provide a summary of the worldwide experience with redo lung transplantation at the 12th annual meeting of the International Society for Heart and Lung Transplantation in 1992.
Pulmonary Reviews     > website
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Pulmonary Reviews is a monthly news magazine for physicians who specialize in pulmonary and/or critical care medicine. It provides physicians with information on disorders that affect the lungs and respiratory tract.
Rare Patient Voice     > website
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Helping patients and caregivers with rare diseases voice their opinions through surveys and interviews to improve medical products and services
Remodulin     > website
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REMODULIN is a type of medication called a prostacyclin analog. It acts similarly to the prostacyclin that is found naturally in the human body, which helps keep the blood vessels open and working properly. Prostacyclin medications work by opening the blood vessels and may reduce the buildup of cells around the blood vessel walls.
Revatio     > website
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REVATIO (sildenafil) is a treatment for pulmonary arterial hypertension (PAH) (WHO Group I) to improve exercise ability, help lessen symptoms, and slow down worsening changes in your physical condition. REVATIO has not been studied in patients taking bosentan.
Rock Scar Love     > website
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RockScar Love is inspiring passionate lives through clothing. We celebrate sexy scars, the lessons they teach us and the strength they create.
Tracleer     > website
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Tracleer is the only oral PAH treatment with over 8 years of proven experience worldwide. It has been thoroughly studied and prescribed for more than 75,000 patients.1
Tyvaso     > website
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TYVASO is a prescription medicine used in adults to treat pulmonary arterial hypertension (PAH), which is high blood pressure in the arteries of your lungs. TYVASO can increase walk distance in people who also take bosentan (an endothelin receptor antagonist) or sildenafil (a phosphodiesterase-5 inhibitor). The effects decrease over 4 hours; treatment timing can be adjusted for planned activities.
Veletri     > website
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Welcome to Veletri.com—the first and only I.V. therapy of its kind that can be used for up to 24 hours without the need for ice packs or cooling pouches. If concentrations lower than 15,000 ng/mL are chosen, pump reservoirs should be changed every 12 hours when administered at room temperature.
Ventavis     > website
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Ventavis is delivered right to the lungs—the site of the disease. Ventavis is the only inhaled PAH therapy that can be given alone to help patients treat PAH symptoms to walk farther and breathe easier with ordinary physical activities.
Find A Cure Transit Pulmonary Hypertension Resources:
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