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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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Leukemia & Lymphoma Society's mission is to find a cure for blood cancers (leukemia, lymphoma, Hodgkin's disease, and myeloma) and to improve the quality of life of patients and their families.
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The MPN Research Foundation funds innovative, accountable research that produces results for patients with polycythemia vera, essential thrombocythemia and myelofibrosis. Founded by patients, for patients, we have strong relationships with top researchers, clinicians and biopharmaceutical companies to ensure progress is being made to get us closer to a cure. Terms on every research grant are negotiated to maximize the dollars invested in actual research.
National Organization for Rare Diseases (NORD)
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NORD’s vision and guiding principles on which our advocacy initiatives are based:
A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
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Caring for Caregivers
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he “Voices of Survivors Foundation” is devoted to exploring what ‘Survivorship’ means to the individual ‘Survivor’, whether they are recently diagnosed, in-treatment or post-treatment, in a variety of documentary formats. Each ‘Survivor’ helps define what this means to not only themselves, but also gives insight to others who are on this journey as well, either as a ‘Survivor’ or a ‘Co-Survivor’.
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