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Find A Cure Transit HAE Resources:
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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HAEI - International Patient Organization for C1-Inhibitor Deficiencies
is a global organization dedicated to raising awareness of C1 inhibitor deficiencies around the world. It is a non-profit international network of national HAE patient Associations.
HAEI is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to help facilitate the availability of effective diagnosis and management of C1 inhibitor deficiencies throughout the world.
National Organization for Rare Diseases (NORD)
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NORD’s vision and guiding principles on which our advocacy initiatives are based:
A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
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The information in Orphan Disease Network is for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional. Orphan Disease Network provides a selected research, information and resources about a small (but growing) number rare diseases. For more specific information, we encourage you to contact your personal physician.
Partnership for Prescription Assistance
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Site that help people who are uninsured get treatment.
Their services are free.
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Caring for Caregivers
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Swell Friends is a non-profit organization dedicated to increasing public awareness and helping to raise research funding for a little-known group of diseases - Hereditary Angioedema (“HAE”) Type III, Idiopathic Angioedemas ("IA") and Unidentified Angioedemas. HAE III is a rare, chronic disease that has no cure. Though recently cases have been identified where there is no family link, the disease is believed to be hereditary. It is most commonly identified in women and individuals of Nordic heritage. Cases of men having HAE III have also been identified.
US Hereditary Angioedema Association (HAEA)
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Welcome to the US Hereditary Angioedema Association, Inc. (US HAEA). Founded and staffed by HAE patients and HAE patient caregivers, we are a non-profit patient advocacy organization dedicated to serving persons with angioedema resulting from C1-Inhibitor deficiency. The Association provides HAE patients and their families with a support network and a wide range of services including physician referrals, and individualized patient support. Our goal is to increase awareness of Hereditary Angioedema by providing patients and physicians with authoritative and readily accessible information. We are committed to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately find a cure.
Find A Cure Transit HAE Resources:
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