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Trish Dainton
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Curse in Verse and Much More Worse - Huntington's Disease in Poetry and Prose Paperback – May 13, 2011

by Trish Dainton (Author)
4.5 out of 5 stars 7
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Using poetry and prose, this book aims at describing Huntington's disease through the eyes of a carer based on her own experiences, and those of many hundreds of carers and sufferers. With over seventy poems, and their supplementary stories grouped within eight themes from science, to society, it touches on the practical sides of caring and darker side of human nature. Being the complex beast that it is, the book not only covers an insight into Huntington's but into the plight of people suffering from all kinds of mental and physical disability, and of those caring for them.
Previous page
  1. Print length
    180 pages
  2. Language
    English
  3. Publisher
    Grosvenor House Publishing Limited
  4. Publication date
    May 13, 2011
  5. Dimensions
    6 x 0.41 x 9 inches
  6. ISBN-10
    1908105097
  7. ISBN-13
    978-1908105097
  8. See all details
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Product details

  • Publisher ‏ : ‎ Grosvenor House Publishing Limited (May 13, 2011)
  • Language ‏ : ‎ English
  • Paperback ‏ : ‎ 180 pages
  • ISBN-10 ‏ : ‎ 1908105097
  • ISBN-13 ‏ : ‎ 978-1908105097
  • Item Weight ‏ : ‎ 9.6 ounces
  • Dimensions ‏ : ‎ 6 x 0.41 x 9 inches
  • Customer Reviews:
    4.5 out of 5 stars 7

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Trish Dainton

Trish Dainton

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Customer reviews

4.5 out of 5 stars
4.5 out of 5
7 global ratings

Top reviews from the United States

M. A. Devlin
5.0 out of 5 stars Wonderful book of poetry that will educates too
Reviewed in the United States on October 15, 2011
Verified Purchase
After losing my mother to Huntington's Disease I purchased this book to do the right thing and spend her money supporting those touched by HD. I ended up with a book that will remain on my bookshelf through hell and high waters because I won't get rid of it.

Trish was a carer for her husband Steve, who suffered from HD. In this book she shares, through prose and poetry, her experiences battling HD. It is clear through her poems that she was at war against this disease as much as her husband.

The book is so powerful I highly recommend it to anyone who is suffering from a serious illness, as well as to their carer.

I only wish I had this book when caring for my mother. Then I would have understood so much clearer what she was going through.
One person found this helpful
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Grannyjanjan
5.0 out of 5 stars Great book
Reviewed in the United States on July 27, 2012
Verified Purchase
This is a wonderful read, especially of you are, or know of, someone with HD/JHD. All the love and heartbreak are expressed beautifully.
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Jimmy Pollard
5.0 out of 5 stars Simply a wonderful book...
Reviewed in the United States on February 22, 2012
Trish cared for her late husband Steve through his long course of Huntington's Disease. This book, however, is about so much more. It's a love story. The depth of love she has for her husband just oozes from the pages. It's about caring for anyone you love who has a progressive disease and/or progressing disability and dependence on others for care. That includes aging.
It's about caring love and providing care and all that it entails. Respect and admiration for the one in your care and the courage and endurance they have. It's about all the little challenges carers face that annoy, befuddle and sometimes bemuse them. It's about precious moments as well as mundane moments. It's a how-to manual for the carer to appreciate all they give and all they give up...and some tricks of the carer's trade.
It's both prose and poetry but the poems will stick with you. I suspect that anybody who reads it will be touched by how she captures moments that you never thought were shared by anyone else.
I could go on and on about how this book touched me. Suffice it to say, if you've got so far as to read this review, just buy the book. It is very unique in its ability to encourge you when life as a carer looks pretty discouraging. If you're facing a progressive disability yourself, I suspect you'll draw some reassurance from seeing how much love and care can be showered upon you.
3 people found this helpful
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Charletta
5.0 out of 5 stars Wonderful!
Reviewed in the United States on January 18, 2013
Having only been diagnosed with huntingtons disease 9 months ago, Ive been at war with my own mind knowing of the future. This book I bought to just see how HD can be expressed in poetry and I was surprised, I laughed, I cried, and I related to nearly every single poem if not because I feel it it was because I lived with it with my mum.. Even if you dont suffer with HD, or live with it or have it in your family, its beautifully written and Ive suggested it to many members of my family/friends etc :)
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Top reviews from other countries

aje muckersie
4.0 out of 5 stars Love and frustrations laid bare.
Reviewed in the United Kingdom on March 1, 2013
Verified Purchase
This is not simply a book of poetry and prose. I found it to be a highly informative, touching, humorous and often disturbing view into the lives of the sufferers of Huntington's disease and their carers.
2 people found this helpful
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boneyjoannie
5.0 out of 5 stars Sympathetically Written Account of just one HD sufferer and his family
Reviewed in the United Kingdom on February 22, 2013
Verified Purchase
I can completely identify with Trish's verses, some are amusing and some poignant. If anyone reading this has anyone or knows anyone suffering from Huntingtons then this is the read for you.
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