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Find A Cure Transit Macular Degeneration Resources:
Age Related Macular Degeneration Project
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The purpose of this web site is to provide information to the public about age-related macular degeneration (AMD), the leading cause of irreversible blindness in the United States. Professionals such as ophthalmologists, other types of physicians, optometrists, researchers, rehabilitation specialists, and health educators may also find the site useful, especially for their patients.
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AMD Alliance International strives to bring knowledge, help and hope to individuals and families around the world affected by AMD.
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A program of the Discovery Eye Foundation whose mission is to provide comprehensive, easily understood and up-to-the-minute information about macular degeneration for everyone who needs it.
book: Honest Medicine by Julia Schopick
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HONEST MEDICINE introduces four lifesaving treatments that have been effectively treating--and in some cases curing--people for 25-90 years.
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Book: Your Medical Mind by Dr. Jerome Groopman that focuses on patient decision making
Cells That Heal Us From Cradle To Grave: A Quantum Leap in Medical Science
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book on stem cell research
Center for Retina and Macular Disease
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Retina and MD specialists with many locations throughout Florida.
CHOIR Stars for the Creative and Performing Arts
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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The Discovery Eye Foundation supports research, education and advocacy related to sight-threatening eye diseases and their treatments, improving the quality of life for patients and their families.
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I have Stargardt's Facebook Group.
Facebook: Stargardt and MD Support Group
> websiteStargardt and MD Support Group on Facebook
Finding My Stride by Kimber Lee Empson
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Sixteen-year-old Kimber Lee was diagnosed with Stargardt disease at the age of eleven. Now preparing to enter college, she tells about living with visual impairment through her important formative years as a teenager.
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Resources to support spiritual well-being for those with chronic illness. Scholarly articles on the inter-relationship between spirituality and medicine. My personal struggles living with an incurable metastatic cancer.
Lighthouse International is dedicated to fighting vision loss through prevention, treatment and empowerment.
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Founded in 1917, we are best known for fighting blindness – it's part of our history as well as our work today. But we also volunteer for many different kinds of community projects – including caring for the environment, feeding the hungry and aiding seniors and the disabled.
This web site is a collaboration between the Association for Macular Diseases, the LuEsther T. Mertz Retinal Research Center, and The Macula Foundation. The site features educational resources, such as the encyclopedia and the news page, as well as opportunities for the site’s users to meet each other and share their experiences and knowledge by using the comment feature following each news article.
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The Macular Degeneration Foundation is dedicated to those who have and will develop macular degeneration. We offer this growing community the latest information, news, hope and encouragement.
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Macular Degeneration International has become a support organization for The Foundation Fighting Blindness which combines the strength of The Foundation’s research mission to find treatments and cures for Macular Degeneration with MDI’s mission to help people lead independent and rewarding lives.
Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight
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The acclaimed book on macular degeneration—now completely revised and updated with cutting edge research and the latest developments in the field.
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In 1989, Karen and Herb Lotman became very interested in finding out who was working to find the cure and prevention for macula degeneration. To their dismay, they learned that there was very little coordinated research or testing being done — even though it is the leading cause of blindness in adults.
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As part of the federal government's National Institutes of Health (NIH), the National Eye Institute’s mission is to "conduct and support research, training, health information dissemination, and other programs with respect to blinding eye diseases, visual disorders, mechanisms of visual function, preservation of sight, and the special health problems and requirements of the blind."
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Ocutech is a leading developer of optical low vision solutions for patients suffering from macular degeneration and other low vision impairments.
Partnership for Prescription Assistance
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Site that help people who are uninsured get treatment.
Their services are free.
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Patient Services, Inc. (PSI) is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind. Two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and co-payments. Since 1989 we have led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas.
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RockScar Love is inspiring passionate lives through clothing. We celebrate sexy scars, the lessons they teach us and the strength they create.
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Much to her family’s concern, a vibrant older woman with failing vision believes she can see and speak with literature’s own Huck Finn.
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Our members either have Stargardt’s or are involved with someone who does. We are a positive group dedicated to improving the lives of our members through the sharing of knowledge, resources, technology, and life experiences. We want to increase the awareness of this condition and to reach out to others who are also coping with it.
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Back in 2002 when I was told that I would possibly lose my sight to wet macular degeneration I was devastated. The central vision allows you to sew, to read books and newspapers, watch TV and see familiar faces. What a tragedy that this most precious gift might be taken from me...
We've been fortunate enough to have traveled a bit since our retirement and those wonderful memories are sealed in many photos. In fact, those photos mean so much to me that I want to share a sampling of them with you, along with some of my poetry and prose.
I have no agenda with this book, except to bring joy and maybe a smile to anyone who lifts the cover and turns each page. Joy is reaching out to touch you if you will but open your heart and your eyes.
Find A Cure Transit Macular Degeneration Resources:
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