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Find A Cure Transit MPN Resources:
book: Honest Medicine by Julia Schopick
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HONEST MEDICINE introduces four lifesaving treatments that have been effectively treating--and in some cases curing--people for 25-90 years.
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Book: Your Medical Mind by Dr. Jerome Groopman that focuses on patient decision making
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Betsy de Parry's book: Adventures in Cancer Land
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The Camisole Connection provides information about cancer-related products and resources for a woman's cancer treatment journey. These products are available through retail outlets; including specialty boutiques*, prosthetic & orthotic shops, drug stores, hospital gift shops, and cancer centers.
Cells That Heal Us From Cradle To Grave: A Quantum Leap in Medical Science
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book on stem cell research
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chemo 4 champions is a cancer support group and page for everyone .we can beat this together !!! , please consult your doctor before trying anything you have heard , seen or done on here
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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Resources to support spiritual well-being for those with chronic illness. Scholarly articles on the inter-relationship between spirituality and medicine. My personal struggles living with an incurable metastatic cancer.
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Leukemia & Lymphoma Society's mission is to find a cure for blood cancers (leukemia, lymphoma, Hodgkin's disease, and myeloma) and to improve the quality of life of patients and their families.
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MF Support Group - Facebook
MPD Atlanta Support Group - Facebook
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MPD Atlanta Support Group on Facebook
Online Resource for MPD Information
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Since 1994, our MPD-SUPPORT web site and free support email list offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis.
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The MPN Research Foundation funds innovative, accountable research that produces results for patients with polycythemia vera, essential thrombocythemia and myelofibrosis. Founded by patients, for patients, we have strong relationships with top researchers, clinicians and biopharmaceutical companies to ensure progress is being made to get us closer to a cure. Terms on every research grant are negotiated to maximize the dollars invested in actual research.
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MPN Support Group - Facebook
National Organization for Rare Diseases (NORD)
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NORD’s vision and guiding principles on which our advocacy initiatives are based:
A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
Partnership for Prescription Assistance
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Site that help people who are uninsured get treatment.
Their services are free.
PV and Budd Chiari Awareness - Facebook
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PV and Budd Chiara Facebook Awareness Group
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PV and MF Facebook Group
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PV Support Group on Facebook
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Caring for Caregivers
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RockScar Love is inspiring passionate lives through clothing. We celebrate sexy scars, the lessons they teach us and the strength they create.
Facebook book page for Susan Marie Thorpe PCF Foundation
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he “Voices of Survivors Foundation” is devoted to exploring what ‘Survivorship’ means to the individual ‘Survivor’, whether they are recently diagnosed, in-treatment or post-treatment, in a variety of documentary formats. Each ‘Survivor’ helps define what this means to not only themselves, but also gives insight to others who are on this journey as well, either as a ‘Survivor’ or a ‘Co-Survivor’.
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Informational and member support site for those with PV
Find A Cure Transit MPN Resources:
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