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Find A Cure Transit Cystic Fibrosis Resources:
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The Blooming Rose Foundation was created to give hope to families immediately following diagnosis, fundraise to positively reach a vast array of individuals and offer an online resource for individuals, families, and friends to find up to date research, links to encouraging websites and blogs as well as a way to connect with other families and adults with CF.
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Making lives of those with Cystic Fibrosis easier one breath at a time. Breathe 4 Tomorrow is 501c3 that was founded to help families and patients living with Cystic Fibrosis with the extra costs that are associated with living with the disease. They help with utility bills, medical bills, lodging, gas and almost anything else that a family may need.
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CF Riders, along with our partner foundation, Laps for CF, is a non-profit organization based in Birmingham, AL dedicated to raising awareness of Cystic Fibrosis, and providing financial support in all areas of need for CF research, treatment, care, and improved quality of life.
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A newsletter for adults who have CF.
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CF community site sponsored by Novartis
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Pod cast hosted by Jerry Cahill
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The Boomer Esiason Foundation's Club CF is an online “club” for individuals with CF of various ages who are LIVING, BREATHING and SUCCEEDING, and for caregivers who are the true warriors in their support and fight against CF.
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The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
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We are patients and families from all over the world, sharing our experiences with CF and gaining power over our disease and our futures. We are joined together to grow our knowledge and reach amazing goals. Please join our community and our movement--together we are building knowledge and reaching for a cure.
David's Law - congressional petition re CF
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Congressional Petition for CF
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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Dottie Lessard is a Personal Empowerment Coach, Nike Athlete, author and life inspiration to all she meets and has created a CF centric not profit called Dottie's Dream.
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Podcast Series hosted by Jerry Cahill.
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Dr. Julie Desch established New Day Wellness (NDW) in 2005. NDW is a non-profit organization with the mission of providing health and wellness coaching and fitness training to individuals with chronic disease. Dr. Desch is a retired physician with cystic fibrosis who, at 46 years of age, has jumped enthusiastically into her second career
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Informational site created by Norma Plourde.
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Caring for Caregivers
Find A Cure Transit Cystic Fibrosis Resources:
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