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Find A Cure Transit Cystic Fibrosis Resources:
Blooming Rose Foundation     > website
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The Blooming Rose Foundation was created to give hope to families immediately following diagnosis, fundraise to positively reach a vast array of individuals and offer an online resource for individuals, families, and friends to find up to date research, links to encouraging websites and blogs as well as a way to connect with other families and adults with CF.
Boomer Esiason Foundation     > website
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Boomer Esiason was a NFL quarterback in 1993 when he learned his young son, Gunnar, was afflicted with the deadly disease cystic fibrosis. Not one to back down from a fight, he immediately launched the Boomer Esiason Foundation and vowed to eliminate the threat of cystic fibrosis.
Breathe 4 Tomorrow     > website
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Making lives of those with Cystic Fibrosis easier one breath at a time. Breathe 4 Tomorrow is 501c3 that was founded to help families and patients living with Cystic Fibrosis with the extra costs that are associated with living with the disease. They help with utility bills, medical bills, lodging, gas and almost anything else that a family may need.
CF Riders     > website
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CF Riders, along with our partner foundation, Laps for CF, is a non-profit organization based in Birmingham, AL dedicated to raising awareness of Cystic Fibrosis, and providing financial support in all areas of need for CF research, treatment, care, and improved quality of life.
CHOIR Stars for the Creative and Performing Arts     > website
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
Club Cystic Fibrosis     > website
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The Boomer Esiason Foundation's Club CF is an online “club” for individuals with CF of various ages who are LIVING, BREATHING and SUCCEEDING, and for caregivers who are the true warriors in their support and fight against CF.
COTA     > website
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The Children's Organ Transplant Association (COTA) exists to assist patients who require a life-saving organ, bone marrow, cord blood or stem cell transplant. We work with all transplant patients age 21 and under for any disease complication, and with any patient who needs a transplant due to a genetic disease such as Cystic Fibrosis or Sickle Cell Anemia.
Cystic Fibrosis Database     > website
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The new Cystic Fibrosis Mutation Database (CFTR1) is devoted to the collection of mutations in the CFTR gene for the international cystic fibrosis genetics research community.
Cystic Fibrosis Foundation     > website
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The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Cystic Fibrosis Institute     > website
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The Cystic Fibrosis Institute (CFI) is committed to supporting those affected by cystic fibrosis in the Chicagoland area and to making a difference by being a meaningful and active source of assistance and advocacy for all CF individuals and families for dealing with the everyday challenge of cystic fibrosis.
Cystic Fibrosis Research Institute     > website
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Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.
Cystic Fibrosis Worldwide     > website
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Cystic Fibrosis Worldwide began our mission to aid people born with cystic fibrosis in 2002. Since our inception we have reached out globally focusing on developing countries and countries where little is known about CF.
Denny Hamlin Foundation     > website
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The Denny Hamlin Foundation will focus primarily on raising awareness and funding for the specific needs of individuals afflicted with Cystic Fibrosis. As such, we will partner with organizations whose purpose is to research treatment and to provide care for individuals with Cystic Fibrosis. The Foundation will also support chronically ill children with other debilitating illnesses.
Disability Benefits Help     > website
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits. These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
Dottie's Dream     > website
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Dottie Lessard is a Personal Empowerment Coach, Nike Athlete, author and life inspiration to all she meets and has created a CF centric not profit called Dottie's Dream.
Fight Forever Foundation     > website
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The sole purpose and undying mission of the Fight Forever Foundation is to Find a Cure for all the brave children and adults who battle with CF now, their families, and the future generations that will be affected by this disease.
Joey's Song/Joe Gomoll Foundation     > website
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Joey's Song is a series of CD's that brings together national and international artists to raise money for epilepsy research and advocacy, in honor of Joey Gomoll. Joey was just shy of 5 years old when he passed away in March 2010. In the months since then his father, and a passionate group of musicians, friends and supporters, have pulled together a collection of rare and unreleased music, as well as special recordings and children's songs. Joey's Song: Volume One and Joey's Song for Kids: Volume 1 were released January 25, 2011! Get your copies today!
National Organization for Rare Diseases (NORD)     > website
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NORD’s vision and guiding principles on which our advocacy initiatives are based: A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society. A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives. A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders. A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
New Day Wellness     > website
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Dr. Julie Desch established New Day Wellness (NDW) in 2005. NDW is a non-profit organization with the mission of providing health and wellness coaching and fitness training to individuals with chronic disease. Dr. Desch is a retired physician with cystic fibrosis who, at 46 years of age, has jumped enthusiastically into her second career
Patient Services Inc.     > website
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Patient Services, Inc. (PSI) is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind. Two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and co-payments. Since 1989 we have led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas.
Rob Cares     > website
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Caring for Caregivers
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