Click an option on the listing key to reorganize search results.
Find A Cure Transit Huntington's Resources:
R
CHDI’s goal is to increase the understanding of Huntington’s disease (HD) and to hasten the development of therapies.We collaborate with academic and industrial scientists throughout the world.
C
K
N
R
A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
European Huntington's Disease Network
> websiteI
R
On this website you find information about the EHDN project (objectives, organisation, people activities on executive committee, central coordination and language coordination, working groups, etc), sponsor of EHDN, participating study sites and ongoing studies (REGISTRY and PREDICT).
N
R
The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research.
R
HDTrials.org has been created to enable clinical trial participation, the HDTrials.org web site will provide quick notification to Huntington families of opportunities for participation in clinical trials and studies through a confidential email list.
N
R
Educational site sponsored by Stanford.
R
Welcome to the new Huntington Study Group web site! The HSG is made up of clinical researchers in North America, Europe, Australia, New Zealand and South America, who care for HD patients and families and who are working diligently to combat this disease.
International Huntington's Association
> websiteR
The International Huntington Association (IHA) is a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease (HD) and their families. Each agency promotes lay and professional education; individual and family support; psycho-social, clinical and biomedical research; and ethical and legal considerations related to Huntington's Disease in its respective country.
N
P
R
Joey's Song is a series of CD's that brings together national and international artists to raise money for epilepsy research and advocacy, in honor of Joey Gomoll. Joey was just shy of 5 years old when he passed away in March 2010. In the months since then his father, and a passionate group of musicians, friends and supporters, have pulled together a collection of rare and unreleased music, as well as special recordings and children's songs. Joey's Song: Volume One and Joey's Song for Kids: Volume 1 were released January 25, 2011! Get your copies today!
B
H
R
Resources to support spiritual well-being for those with chronic illness. Scholarly articles on the inter-relationship between spirituality and medicine. My personal struggles living with an incurable metastatic cancer.
National Organization for Rare Diseases (NORD)
> websiteN
R
NORD’s vision and guiding principles on which our advocacy initiatives are based:
A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
Find A Cure Transit Huntington's Resources:
Click an option on the listing key to reorganize search results.