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Find A Cure Transit Huntington's Resources:
CHOIR Stars for the Creative and Performing Arts
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
Huntington's and how it affects lives
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Jake Reynolds family video on HD.
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Most of the research on Huntingtons Disease is directed at the adult population which does not directly apply to those with juvenile-onset HD because of several factors. The most significant difference is that in JHD the disease occurs before the brain is fully developed. This accounts for the wide variation at one age from JHD to another age. Maturation and neurodegeneration occur at the same time in JHD. Another unique aspect of JHD is the extremely large CAG burden which greatly effects severity. Social development, physical rehabilitaion requirements and educational goals are additional items unique to patients with JHD.
Find A Cure Transit Huntington's Resources:
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