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28 Below Foundation's mission is to disseminate useful information, to perform charitable services and to raise awareness enhancing the productivity and quality of life for teenagers and young adults with lupus and related diseases.
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Alliance for Aging Research is the nation's leading citizen advocacy organization for improving the health and independence of Americans as they age.
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The Alliance for Lupus Research seeks better treatments and a cure systemic lupus erythematosus by assisting scientists at the most prestigious universities, medical schools, hospitals, and private companies throughout the world.
CHOIR Stars for the Creative and Performing Arts
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
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CuresNow is fighting for the lives of millions of Americans through a campaign of mass education in ethical scientific research in the advancement of regenerative medicine, the most promising technology to date for unlocking a cure for some of the most debilitating diseases.
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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Joey's Song is a series of CD's that brings together national and international artists to raise money for epilepsy research and advocacy, in honor of Joey Gomoll. Joey was just shy of 5 years old when he passed away in March 2010. In the months since then his father, and a passionate group of musicians, friends and supporters, have pulled together a collection of rare and unreleased music, as well as special recordings and children's songs. Joey's Song: Volume One and Joey's Song for Kids: Volume 1 were released January 25, 2011! Get your copies today!
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The Let Us Live Foundation seeks to reduce the incidence of kidney failure, especially in the African American Community, by providing emotional, physical, and financial support to patients stricken with kidney failure, and educating potential kidney failure candidates of the severity of being diagnosed with hypertension, diabetes and lupus.
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Loops for Lupus creates awareness and raises funds for lupus disease through a grass roots effort of people helping people.
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The Lupus Alliance of America is a group of agencies that have come together for the express purpose of providing needed services to those affected by lupus within their local communities. Our mission is “To ensure the delivery of services to those affected by lupus through affiliate members and other agencies and to fund research efforts.”
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The Lupus Foundation of America is the nation?s leading nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support and services to all people affected by lupus.
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The mission of the Lupus Foundation New England is to educate and support people with lupus, promote awareness and fund scientific research that will lead to better treatments and ultimately a cure.
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Lupus International provides education and supportive services to those affected by lupus, thier loved ones and members of the community.
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The Lupus Research Institute is a national nonprofit organization that supports only the highest-ranked novel research to determine the cause, improve treatment, and, ultimately, to prevent and cure systemic lupus erythematosus.
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The Lupus Society for Positive Living provides quality-of-life programs for men and women afflicted with lupus through a diverse support network for lupus patients and their families.
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Lupus Star Foundation is a Michigan based Nonprofit Organization. We were created to serve lupus patients and their families. Lupus Star Foundation will offer support and services to anyone who is affected by lupus. We will strive to raise public awareness of lupus and its affects.
National Organization for Rare Diseases (NORD)
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NORD’s vision and guiding principles on which our advocacy initiatives are based:
A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
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Patient Services, Inc. (PSI) is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind. Two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and co-payments. Since 1989 we have led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas.
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The SLE Lupus Foundation encourages and supports lupus research, provides services for people with lupus and their families, and informs the greater public about this chronic autoimmune disease.
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SNUGHUGS.ORG is a not for profit charitable organization that delivers fleece tied blankets to children in hospitals that are fighting life threatening illnesses.
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