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Find A Cure Transit Hemophilia Resources:
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Through the eyes of survivors and family members, BAD BLOOD chronicles how a “miracle” treatment for hemophilia became an agent of death for 10,000 Americans
Bleeding Disorders Foundation of Washington
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The Bleeding Disorder Foundation of Washington is a volunteer-based non-profit that works to improve the quality of life of individuals and families affected by bleeding disorders by providing caring support , quality education and targeted advocacy aimed at enhancing medical care and insurance coverage for our community.
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Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients.
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Causes of Hemophilia aims to empower consumers through providing information that may help in the development of informed decisions
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At CuraScript, we are dedicated to the delivery of extraordinary care, one patient at a time. Providing affordable, high quality care for complex chronic conditions requires cooperation among many healthcare experts. CuraScript offers a broad range of services for physicians, health plan sponsors, and pharmaceutical manufacturers to support the delivery of that care.
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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Find A Cure Panel is a market research service created specifically to impanel people with long term ailments such as Parkinson's, epilepsy, HIV/AIDS, cancer, etc. and their caregivers. If you would like to know more about how you can help find a cure, please contact us.
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Girl Bleeder is a blog written by a Special Education Teacher with hemophilia.
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Founded in the 1950's, The Hemophilia Foundation of Maryland is the only non-profit 501 (c)(3) organization in the state of Maryland which is devoted to improving the quality of life for persons affected with bleeding disorders and their complications. The bleeding disorder community includes people with Hemophilia A, Hemophilia B and von Willebrand disease.
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The Hemophilia Outreach of El Paso is a non profit 501(c)3 organization, established by volunteers, who are individuals or parents of children with Hemophilia and/or von-Willebrand. Our objective is to give all necessary educational information and emotional support to individuals and families that have a bleeding disorder.
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LA Kelley Communications offers free groundbreaking books and newsletters with the single goal of helping families master your world of bleeding disorders.
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The Lone Star Chapter of the National Hemophilia Foundation serves the bleeding disorders community of South Texas. We are based in Houston and our area includes McAllen, Corpus Christi, San Antonio, Austin, and El Paso
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Matrix Health is a specialized pharmacy dedicated, determined, and committed to providing outstanding comprehensive services to those with hemophilia, von Willebrand, and other bleeding disorders.
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hemophilia social community
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My Blood Brothers is a social networking site for people affected by Hemophilia, and their families, friends, and loved-ones.
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The New York City Hemophilia Chapter (NYCHC) is a non-profit 501(c)3 organization incorporated in 2008 to address the needs of the bleeding disorder community in the greater NYC area, including: Long Island, Staten Island, Westchester, Queens and Brooklyn.
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Caring for Caregivers
Tennessee Hemophilia and Bleeding Disorders Foundation
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The Tennessee Hemophilia and Bleeding Disorder Foundation’s mission is to Enhance the Lives of Those Affected by Bleeding Disorders.
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Amy Maeder is a mother of two teenagers with severe hemophilia. Amy is very passionate about improving the lives of her sons and the bleeding disorders community. Amy, along with HFA encourages you to TAKE ACTION! Call or write your person in congress TODAY!
Find A Cure Transit Hemophilia Resources:
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