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Find A Cure Transit Hemophilia Resources:
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The Center for Courageous Kids of Scottsville, Kentucky is a free medical camping facility designed specifically for children suffering from illnesses such as cancer, heart disease, kidney disease, epilepsy, spina bifida, diabetes, severe asthma, hemophilia, HIV, and juvenile arthritis.
CHOIR Stars for the Creative and Performing Arts
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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The Family Resource Network is a comprehensive family-focused human service organization serving a broad spectrum of disabilities.
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Find A Cure Panel is a market research service created specifically to impanel people with long term ailments such as Parkinson's, epilepsy, HIV/AIDS, cancer, etc. and their caregivers. If you would like to know more about how you can help find a cure, please contact us.
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The Haemophilia Society works in close partnership with the United Kingdom's National Health Service to provide information and support for all people affected by bleeding disorders.
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The Hemophilia Outreach of El Paso is a non profit 501(c)3 organization, established by volunteers, who are individuals or parents of children with Hemophilia and/or von-Willebrand. Our objective is to give all necessary educational information and emotional support to individuals and families that have a bleeding disorder.
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Kelly Champagne discusses her son's hemophilia.
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KidsHealth provides information about hemophilia, the rare bleeding disorder which prevents the blood from clotting properly.
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LA Kelley Communications offers free groundbreaking books and newsletters with the single goal of helping families master your world of bleeding disorders.
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Matrix Health is a specialized pharmacy dedicated, determined, and committed to providing outstanding comprehensive services to those with hemophilia, von Willebrand, and other bleeding disorders.
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SNUGHUGS.ORG is a not for profit charitable organization that delivers fleece tied blankets to children in hospitals that are fighting life threatening illnesses.
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Amy Maeder is a mother of two teenagers with severe hemophilia. Amy is very passionate about improving the lives of her sons and the bleeding disorders community. Amy, along with HFA encourages you to TAKE ACTION! Call or write your person in congress TODAY!
Find A Cure Transit Hemophilia Resources:
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