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Find A Cure Transit Hemophilia Resources:
Bleeding Disorders Foundation of Washington
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The Bleeding Disorder Foundation of Washington is a volunteer-based non-profit that works to improve the quality of life of individuals and families affected by bleeding disorders by providing caring support , quality education and targeted advocacy aimed at enhancing medical care and insurance coverage for our community.
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The Canadian Hemophilia Society strives to improve the health and quality of life for all people with inherited bleeding disorders and to find a cure.
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The Center for Courageous Kids of Scottsville, Kentucky is a free medical camping facility designed specifically for children suffering from illnesses such as cancer, heart disease, kidney disease, epilepsy, spina bifida, diabetes, severe asthma, hemophilia, HIV, and juvenile arthritis.
CHOIR Stars for the Creative and Performing Arts
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C.H.O.I.R. Stars for the Creative and Performing Arts® is a non-profit organization committed to providing hope and inspiration through the creative and performing arts to teens and young adults with a variety of health conditions. Our organization holds weekend arts workshops throughout the year for teens and young adults with chronic health conditions and their siblings, and offers additional programming such as our multiple free family arts outings a year. In addition, we provide arts outreach to youth in hospitals, and provide awareness for the health conditions our C.H.O.I.R. families are facing.
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The Coalition for Hemophilia B seeks to provide information about treatment options to patients and their families, as well as instigate and fund research and product development that will improve quality of life for those living with Hemophilia, and ultimately eliminate the disease.
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Coping.org provides tools for coping with Hemophilia and other bleeding disorders.
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CuresNow is fighting for the lives of millions of Americans through a campaign of mass education in ethical scientific research in the advancement of regenerative medicine, the most promising technology to date for unlocking a cure for some of the most debilitating diseases.
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits.
These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
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The Family Resource Network is a comprehensive family-focused human service organization serving a broad spectrum of disabilities.
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FAMOHIO is a non-profit organization that provides emotional and educational support to individuals with hemophilia and related bleeding disorders.
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The Great Lakes Hemophilia Foundation is dedicated to advancing the quality of life of individuals and families affected by hemophilia or other blood disorders by ensuring a broad range of services and programs while supporting research to improve care and to find a cure.
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The Haemophilia Society works in close partnership with the United Kingdom's National Health Service to provide information and support for all people affected by bleeding disorders.
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The Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community.
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The Hemophilia Foundation of Illinois exists to improve the quality of life for persons affected by inherited bleeding disorders.
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Founded in the 1950's, The Hemophilia Foundation of Maryland is the only non-profit 501 (c)(3) organization in the state of Maryland which is devoted to improving the quality of life for persons affected with bleeding disorders and their complications. The bleeding disorder community includes people with Hemophilia A, Hemophilia B and von Willebrand disease.
Hemophilia Foundation of Southern California
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Hemophilia Foundation of Southern California seeks to promote, supervise and administer the programs for the welfare of people with hemophilia, related bleeding disorders, and their families, through proper medical care, treatment, education and research.
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The Hemophilia Outreach of El Paso is a non profit 501(c)3 organization, established by volunteers, who are individuals or parents of children with Hemophilia and/or von-Willebrand. Our objective is to give all necessary educational information and emotional support to individuals and families that have a bleeding disorder.
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Joey's Song is a series of CD's that brings together national and international artists to raise money for epilepsy research and advocacy, in honor of Joey Gomoll. Joey was just shy of 5 years old when he passed away in March 2010. In the months since then his father, and a passionate group of musicians, friends and supporters, have pulled together a collection of rare and unreleased music, as well as special recordings and children's songs. Joey's Song: Volume One and Joey's Song for Kids: Volume 1 were released January 25, 2011! Get your copies today!
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The Kentucky Hemophilia Foundation seeks to enhance the lives of those affected by hemophilia and other bleeding disorders.
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The Lone Star Chapter of the National Hemophilia Foundation serves the bleeding disorders community of South Texas. We are based in Houston and our area includes McAllen, Corpus Christi, San Antonio, Austin, and El Paso
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The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
National Organization for Rare Diseases (NORD)
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NORD’s vision and guiding principles on which our advocacy initiatives are based:
A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
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The New England Hemophilia Association is dedicated to improving the quality of life for persons with bleeding disorders and their families through education, support, and advocacy.
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The New York City Hemophilia Chapter (NYCHC) is a non-profit 501(c)3 organization incorporated in 2008 to address the needs of the bleeding disorder community in the greater NYC area, including: Long Island, Staten Island, Westchester, Queens and Brooklyn.
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Patient Services, Inc. (PSI) is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind. Two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and co-payments. Since 1989 we have led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas.
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The Reach for the Stars Foundation is dedicated to providing individuals afflicted with Cystic Fibrosis and their families with the resources, knowledge and support necessary to manage their unrelenting battle with this insidious disease. Cystic Fibrosis is not only physically debilitating, but carries a heavy financial and psychological burden for families.
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Caring for Caregivers
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Save One Life, Inc. is a sponsorship program dedicated to improving the lives of children and young adults with hemophilia and other bleeding disorders in the developing world.
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SNUGHUGS.ORG is a not for profit charitable organization that delivers fleece tied blankets to children in hospitals that are fighting life threatening illnesses.
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The Swedish Hemophilia Society aims to inform the general public, the community and government institutions about the hemophilia disease and its consequences, as well as aid the hemophiliacs in their lives.
Tennessee Hemophilia and Bleeding Disorders Foundation
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The Tennessee Hemophilia and Bleeding Disorder Foundation’s mission is to Enhance the Lives of Those Affected by Bleeding Disorders.
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The Utah Hemophilia Foundation seeks to empower individuals and families affected by hemophilia to lead healthier and more self-sufficient lives.
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Through its various healthcare development programs and publications the World Federation of Hemophilia works to introduce, improve, and maintain care for people with hemophilia and related disorders around the world.
Find A Cure Transit Hemophilia Resources:
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