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Find A Cure Transit Hemophilia Resources:
All About Bleeding     > website
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All About Bleeding is an informative resource for the von Willebrand disease community brought to you by CSL Behring, a company with a long combined history of creating a stable supply of life-saving therapies.
Blloodline     > website
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BloodLine was launched in December of 1995 at the American Society of Hematology Annual Meeting. Initially, it was a reference site containing links to important hematology sites and resources on the Internet. Over the years, the site has gone through many major revisions with the aim of placing more emphasis on the publication of original content and improving the site's editorial focus and scientific validity.
CuresNow     > website
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CuresNow is fighting for the lives of millions of Americans through a campaign of mass education in ethical scientific research in the advancement of regenerative medicine, the most promising technology to date for unlocking a cure for some of the most debilitating diseases.
Disability Benefits Help     > website
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A resource for disabling conditions that can be considered severe enough by the Social Security Administration (SSA) to qualify a person for Social Security disability benefits. These conditions can interfere with an individual’s ability to achieve gainful employment, thereby making that person eligible for SSDI or SSI benefits.
Find A Cure Panel     > website
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Find A Cure Panel is a market research service created specifically to impanel people with long term ailments such as Parkinson's, epilepsy, HIV/AIDS, cancer, etc. and their caregivers. If you would like to know more about how you can help find a cure, please contact us.
Joey's Song/Joe Gomoll Foundation     > website
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Joey's Song is a series of CD's that brings together national and international artists to raise money for epilepsy research and advocacy, in honor of Joey Gomoll. Joey was just shy of 5 years old when he passed away in March 2010. In the months since then his father, and a passionate group of musicians, friends and supporters, have pulled together a collection of rare and unreleased music, as well as special recordings and children's songs. Joey's Song: Volume One and Joey's Song for Kids: Volume 1 were released January 25, 2011! Get your copies today!
Landis Vance     > website
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Resources to support spiritual well-being for those with chronic illness. Scholarly articles on the inter-relationship between spirituality and medicine. My personal struggles living with an incurable metastatic cancer.
National Organization for Rare Diseases (NORD)     > website
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NORD’s vision and guiding principles on which our advocacy initiatives are based: A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society. A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives. A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders. A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.
Rare Patient Voice     > website
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Helping patients and caregivers with rare diseases voice their opinions through surveys and interviews to improve medical products and services
Find A Cure Transit Hemophilia Resources:
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